Patient-Partnered Team Science is Key to Patient-Centered Care
TimeThursday, April 152:00pm - 3:00pm EDT
LocationPatient Safety Research and Initiatives
DescriptionEngaging lay individuals that have experience as patients as collaborators on multi-disciplinary research teams is an opportunity to allow patient perspectives to inform all aspects of research, design, and implementation. Benefits are not just limited to patient-facing solutions, but affect any healthcare solutions in which patients have a stake. Teaming with patient scientists has the potential to yield tailored questions and solutions in service of equity, inclusion, and better outcomes.
As a discipline actively engaged in healthcare research, operations, and potentially clinical practice, human factors must be aware of the culture shift of incorporating patient perspectives beyond just the data collection stage. In our poster, we propose to provide an overview of this topic, as well as identify areas where human factors can both benefit from and inform this important culture shift. We will introduce mechanisms, considerations, and challenges of creating a multi-disciplinary teams starting with identifying and socializing a research question to developing a research grant. We will highlight considerations including human subjects protection training, representing patient scientists on an IRB protocol and on a grant proposal budget; as well as touch upon dissemination of research findings that are accessible to and understandable by patients. We will draw on the existing, but yet limited experiences of our team (comprised of a patient, clinician, and a human factors scientist) to date, as well as incorporate literature (scholarly and calls to action) in this problem space. Most importantly, we will identify questions and uncertainties. This is an opportunity to learn from each other, so we can all work towards more inclusive science and becoming better collaborators.